Caring
for Others

GET SUPPORT WHILE

CARING FOR OTHERS

Being a caregiver for someone with a movement disorder can be life-changing. But with the right preparation and expectations, it can be lead towards a fuller life for both you and your loved one.

CARING FOR THOSE

WITH MOVEMENT DISORDERS

As a caregiver, a movement disorder diagnosis comes with a lot of questions and concerns. As your loved one’s symptoms evolve, you’ll find yourself adapting to new needs and various changes. While it may feel lonely, it’s important to remember that you’re partners in this journey. Here are a few steps you can take together to manage the emotional, physical and financial challenges a diagnosis brings.

PHYSICAL SUPPORT

  • Talk about how you can best help them with changing physical needs
  • Discuss the tasks they perform every day and where they may need help

EMOTIONAL SUPPORT

  • A movement disorder can affect your loved one’s ability to do simple tasks like dressing, eating and drinking. Your understanding and patience can help them adjust.
  • Try to keep your loved one socially connected to new and old friends
  • Offer support. But don’t be afraid to ask for it too. Your self-care is crucial.

FINANCIAL PREPERATION

  • Know your coverage.
  • If you need help, ask a healthcare provider to connect you to a patient navigator or a financial counselor.

TRACK THEIR TREATMENT

  • Know their schedule and help make sure they get to appointments and receive proper care
  • Understand their treatment history
  • Know when it’s time to consider different kind of treatment

RX ONLY

Brief Summary: Prior to using these devices, please review the User’s Guide for a complete listing of indications, contraindications, warnings, precautions, potential adverse events, and directions for use. The system is intended to be used with leads and associated extensions that are compatible with the system. Indications for Use: Unilateral or bilateral stimulation of the thalamus, internal globus pallidus (GPi), or subthalamic nucleus (STN) in patients who are at least 18 years old with levodopa-responsive Parkinson’s disease. Unilateral or bilateral stimulation of the ventral intermediate nucleus (VIM) of the thalamus for the management of tremor for patients who are at least 18 years old. Unilateral or bilateral stimulation of the internal globus pallidus (GPi) or the subthalamic nucleus (STN) for the management of intractable, chronic dystonia, including primary and secondary dystonia, for patients who are at least 7 years old.

Contraindications: Patients who are unable to properly operate the system or for whom test stimulation is unsuccessful. Diathermy and magnetic resonance imaging are contraindicated for patients with a deep brain stimulation system.

Warnings/Precautions: Return of symptoms due to abrupt cessation of stimulation (rebound effect), excessive or low frequency stimulation, risk of depression and suicide, implanted cardiac systems or other active implantable devices, magnetic resonance imaging (MRI), electromagnetic interference (EMI), proximity to electrosurgery devices and high-output ultrasonics and lithotripsy, ultrasonic scanning equipment, external defibrillators, and therapeutic radiation, therapeutic magnets, household appliances containing magnets, radiofrequency sources, explosive or flammable gases, theft detectors and metal screening devices, activities requiring excessive twisting or stretching, operation of machinery and equipment, pregnancy, nursing, psychotherapeutic procedures, electrocardiograms, cremation, and case damage. Patients who are poor surgical risks, with multiple illnesses, or with active general infections should not be implanted.

Adverse Effects: Loss of therapeutic benefit or decreased therapeutic response, painful stimulation, persistent pain around the implanted parts (e.g., along the extension path in the neck), worsening of motor impairment, paresis, dystonia, sensory disturbance or impairment, speech or language impairment, and cognitive impairment. Surgical risks include intracranial hemorrhage, stroke, paralysis, and death. Other complications may include seizures and infection. User’s Guide must be reviewed for detailed disclosure.

REFERENCES

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